The 2nd Annual Philosophy in Action Conference

The Ethics of Genetic Testing: Academic, Insurance, and Health-Care Perspectives

March 14-15, 1996, Indiana State University, Terre Haute, Indiana

Sponsored by The College of Arts and Sciences, The School of Business and The Terre Haute Center for Medical Education, Indiana State University.

About The Conference

As a result of the Human Genome Project (HGP), progress in genetic screening will soon make it possible to predict chronic disease risk in many individuals prior to the emergence of symptoms. As the HGP advances and the medical community incorporates genetic screening technology into its care procedures, there is a major need to consider the perspectives of other involved parties such as attorneys, counselors, psychologists, biologists, and the insurance industry.

The program is structured to emphasize interdisciplinary interaction in order to facilitate communication, the sharing of information, and bringing applied ethics to bear on major contemporary issues. The thrust of this conference is to offer a forum where diverse and ofien conflicting positions can be expressed, considered, and hopefully reconciled through a philosophical framework.

Who Should Attend

The interdisciplinary nature of the conference should be of particular interest to scholars and practitioners in the fields of bioethics, law, sociology, psychology, and the life sciences, as well as insurance regulators, private insurers, and policy makers from business or government.

Thursday, March 14 1996

8:00 - 8:45 am Registration

8:45 - 9:00 Welcome

Richard Wells, Provost and Vice President for Academic Affairs, Indiana State University

9:00 -10:00 Plenary Address

The Internal Controls: Ethical Considerations in the Conduct of the U.S. Human Genome Project, Eric Juengst, Center for Biomedical Ethics. Case Western Reserve University

This keynote session will focus on the concepts of predictive genetic testing, privacy and confidentiality issues, genetic discrimination, and scientific self-policing. Dr. Juengst will address these themes by discussing the clinical impact of genome research, the ethical and social challenges created by the acquisition and delivery of this information, and the science policy implications for the future of human genetic research.

10:00-10:30 Refreshment Break

10:30-12:00 pm Respondent Panel

Celeste Condit, Department of Speech Communication, University of Georgia, and David Smith, Poynter Center, Indiana University

12:00-1:30 Luncheon

1:30-2:30 Plenary Address

Genetic Testing: A Perspective from an Insurance Regulator, William May, Assistant Director, Ohio Department of Insurance.

This presentation will discuss the ramifications as state and federal policy makers consider the many complex issues and questions raised by advances in genetic testing. In particular, the impact of genetic testing will be different for the variety of insurance products available in life, health and disability income policies. Other considerations include differences in financing public vs. private health insurance programs and availablity and affordability of life insurance vs. an insurer's ability to assess risk. Finally, the impact of the private and voluntary insurance marketplace on capital markets and investment capital will be discussed.

2:30-3:00 Refreshment Break

3:00-4:30 Respondent Panel

James Harris, Vice-President and Corporate Medical Director, American United Life Insurance Company; Paul Fuerst, Department of Molecular Genetics, The Ohio State University; and Michael Bergin, Attorney-at-Law, Locke Reynolds Boyd & Weisell

5:00-8:00 Reception & Dinner

Friday, March 15 1996

9:00-10:00 am Plenary Address

Reflections of a Clinician: The Human Genome Project, Harry Keffer, Department of Anesthesiology, Union Hospital, Terre Haute, Indiana

This presentation deals with the Human Genome Project as seen by a physician-ethicist. Questions will be posed at several levels of concern including philosophical, economic, scientific, legal, health care delivery, sociological, and personal. In addition, four areas will be addressed: (I) the origins of the HGP and its goals; (2) the potential benefits and burdens of the HGP to humanity generally; (3) the problems and opportunities the HGP poses for health care providers; and (4) the response to the HGP based on historical consideration of our experience with other major scientific projects and technologies.

10:00-10:30 Refreshment Break

10:30-12:00 pm Respondent Panel

Susan Romie, Department of Medical and Molecular Genetics, Indiana University Medical Center; Robert Bischoff, Continental Rehabilitation Hospital; and Judith Westman, Clinical Genetics, Children's Hospital, Columbus, Ohio

12:00-1:30 Luncheon

1:30-3:30 Closing Address

Critical Issues: An Interclisciplinary Dialogue, Celeste Condit and David Smith.

3:30 Adjourn

Meet Your Keynote Speakers

Eric T. Juengst is Associate Professor of Biomedical Ethics at the Case Western Reserve University School of Medicine in Cleveland, Ohio. He received his Ph.D. in Philosophy from Georgetown University in 1985, and has taught medical ethics and the philosophy of science on the faculties of the medical schools of Penn State University, and the University of California, San Francisco. His research interests and publications have focused on the conceptual and ethical issues raised by new advances in human genetics and biotechnology, and from 1990 to 1994 he was the first Chief of the Ethical, Legal, and Social Implications Branch of the National Center for Human Genome Research at the U.S. Institutes of Health. He currently serves on the National Ethics Comrnittee of the March of Dimes, and the editorial boards of the Journal of Medicine and Philosophy, Human Gene Therapy, and the American Journal of Medical Genetics.

William May is currently Assistant Director of the Ohio Department of Insurance, Office of Life and Health Services. In that capacity he oversees all rates, forms and filings for all life and health indemnity products and licensure of life and health companies, and directs the managed care division. He is currently the chairperson of the Ohio Genetic Testing and Screening Task Force created under House Bill 71 in 1993, and serves on the National Association of Insurance Commissioners Working Group on Genetic Testing. Mr. May holds two degrees from Ohio University in Athens, Ohio, and for the past two years has been faculty for the National Association of Managed Care Regulators, specializing in education and training of fellow regulators throughout the country.

Harry L. Keffer, M.D., is a practicing anesthesiologist with Anesthesia Associates at Union Hospital, Terre Haute, Indiana, where he chairs both the Department of Anesthesiology and the Medical Staff Ethics Committee. A lecturer on anesthesia and ethics topics at the Indiana University Medical School's Terre Haute campus, Dr. Keffer has coauthored several publications on end-of-life decision-making with his wife, M. Jan Keffer, Ph.D., and has given over 50 presentations on ethics topics.

Celeste M. Condit is a Professor of Speech Communication at the University of Georgia. Her publications explore the dynamics of moral controversies in the public sphere and include Decoding Abortion Rhetoric (University of Illinois, 1990), Crafting Equality (with J.L. Lucaites, University of Chicago Press, 1994), and Evaluating Women 's Health Messages (with Roxanne Parrot, Sage, 1996). She began to focus on the role of genetics in the evolution of human reproductive values through a Study in a Second Discipline Fellowship that included laboratory and course work in genetics and ethnographic research through the Visiting Investigator Program at the National Institutes of Health. Her research in that area appears in a variety of communication journals, and she is currently working on a book entitled The Meaning of the Gene: Dreams and Nightmares of Control.

David H. Smith is a Professor of Religious Studies and Director of the Poynter Center for the Study of Ethics and American Institutions at Indiana University, Bloomington, Indiana. He has written and taught about religion and ethics, medical ethics, and ethical issues associated with research in the life sciences and genetics. Dr. Smith has designed and taught in several programs helping faculty from many disciplines teach ethics in their courses. Some of those programs focused on the IU campus, some have been statewide and others, national in scope. He chairs the Executive Committee of the Association for Practical and Professional Ethics, and his most recent book, Entrusted: The Moral Responsibilities of Trusteeship (Indiana University Press, 1995), is a discussion of the responsibilities of the trustees of private institutions to dedicate those institutions to the common good.

General Information

Registration fee

General registration for the conference is $ 195.00. Non-ISU Faculty may register for $50.00. ISU faculty may register for the reduced fee of $25. Students may attend at no charge. The fee includes refreshment breaks, a conference reception, and materials. There is an additional fee for attendance at the program luncheons and dinner.

Program Location

The conference will be held in the Hulman Memorial Student Union on the Indiana State University campus. A map of the campus, and parking information, will be included with all registration acknowledgments.

Lodging

A block of rooms has been reserved at the Holiday Inn Terre Haute for the conference. To make reservations, participants should contact the Holiday Inn, 3300 Dixie Bee Highway, Terre Haute, IN 47802, (812) 232-6081. Be sure to mention you are attending The Ethics of Genetic Testing to receive the conference rate of $64 single/$74 double. Additional lodging information will be provided upon request.

Cancellation policy

If you must cancel your registration, please do so no later than March 11, 1996, to receive a refund. After that date, no refunds can be made.

For More Information

Contact: The Office of Conferences and Non-Credit Programs, Indiana State University, Reeve Hall 101, Terre Haute, IN,47809, or call 812-237-2522, or toll free at 1-800-234-1639.

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Last updated: 10 June 1996
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Copyright 1996, The Trustees of Indiana University